10 Things to be Aware of on NF Awareness Day

May is NF Awareness Month, and Thursday, May 20 is THE NF Awareness Day.

Number 10: Neurofibromatosis (NF) affects more than one in every 3,000 children born each day (*that’s more than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined.

Number 9: It only takes 8 to 10 letters from you and your friends to your congressman or congresswoman for them to start noticing that NF is a very REAL issue.

Number 8: NF research is shedding new light on cancer, brain tumors, learning disabilities, and bone abnormalities - ultimately benefiting the broader community, in addition to those with NF.

Number 7: On May 8th, in Greensboro NC, there were more than 1,700,000 steps taken to find a cure for NF at the first North Carolina NF Walk.

Number 6: The NF Clinic Network now has 42 recognized centers throughout the country.

Number 5: This year, Racing4Research completed 611 Laps in the Rolex 24 Hours at Daytona International Speedway raising spirits, funds, and awareness for our NF Heroes!

Number 4: To date, the Foundation's investment of $700,000 in the Drug Discovery Initiative has returned $3.7 million in follow-on funding. Every dollar counts.

Number 3: In 2009 more than 1,500 Runners in NF Singlets crossed finish lines in 50 races nationwide for the NF Endurance Team.

Number 2: There are three forms of neurofibromatosis, NF1, NF2, and schwannomatosis, each cause tumors to grow on nerve endings in or on the body.

And the Number 1 thing to be Aware of on NF Awareness Day... Every day NF research is moving closer to treatments and a cure for the many manifestations of NF. Your continued support of this critical research is bettering the lives of millions of people as we work to end NF!

visit www.ctf.org for more info